Archive for the tag: Hypersomnia

Re-thinking Classifications of Type 2 Narcolepsy & Idiopathic Hypersomnia: Dr. Emmanuel Mignot Pt II

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In Part II of this interview, Emmanuel Mignot, MD, PhD, Director of the Stanford Center for Sleep Sciences and Medicine at Stanford University speaks with Julie Flygare, JD, President & CEO of Project Sleep, to discuss the narcolepsy research field’s re-thinking of the classifications of type 2 narcolepsy without cataplexy and idiopathic hypersomnia.

This is part II a longer interview available here: https://youtu.be/UhTpNK8vvqk
Recorded on Thursday, April 23, 2020

Dr. Emmanuel Mignot is Professor of Psychiatry and Behavioral Sciences at Stanford University. He received his M.D. and Ph.D. from Paris V and VI University in France. Dr. Mignot is internationally recognized for discovering the cause of narcolepsy. He has received numerous research grants and honors and is the co-author of more than 200 original scientific publications. Most of Dr. Mignot’s current research focuses on the neurobiology, genetics and immunology of narcolepsy, a disorder caused by hypocretin (orexin) cell loss, with indirect interest in the neuroimmunology of other brain disorders. His laboratory uses state of the art human genetics techniques, such as genome wide association, exome or whole genome sequencing in the study of human sleep and sleep disorders, with parallel studies in animal models. His laboratory is also interested in web-based assessments of sleep disorders, computer-based processing of polysomnography (PSG), and outcomes research.

Julie Flygare, J.D. is the President & CEO of Project Sleep and award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. After receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. In 2013, Flygare founded Project Sleep as a national non-profit organization dedicated to raising awareness about sleep health and sleep disorders. In her current role, she aims to empower a new generation of speakers, writers, patient advocates and community leaders in the sleep space. She is the co-creator of the first-ever scholarship program for students with narcolepsy, along with the Rising Voices of Narcolepsy℠ leadership training program. Flygare received her B.A. from Brown University and her J.D. from Boston College Law School, focusing on health law and policy.

This video is brought to you by Project Sleep, a 501(c)(3) non-profit organization dedicated to raising awareness of sleep health and sleep disorders. Project Sleep’s current programming includes the Rising Voices of Narcolepsy℠ leadership training program, the Jack & Julie Narcolepsy Scholarship, Narcolepsy: Not Alone®, the Sleep In campaign, and national sleep advocacy efforts. Learn more: http://project-sleep.com/

Note: This event is for educational purposes and not intended to be a substitute for professional medical advice. Should you have personal healthcare-related questions, please contact your sleep specialist or a qualified health provider.

Beth Describes Hypersomnia Symptoms Upon Waking

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Beth Describes Hypersomnia Symptoms Upon Waking

Beth describes the difficulty she has in waking and her medication regime due to having a neurological disorder called hypersomnia. She is bravely sharing her truth with the world for idiopathic hypersomnia awareness week 2016, in the hopes that sharing her journey will help someone else out there who is desperately searching for answers and is feeling totally alone. We thank Beth for allowing us to peek inside her life.

For more information please visit our website at: www.atlantahypersomniasupport.com
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