Do you feel sleepy all the time? It could be Idiopathic Hypersomnia (IH). In this video, we’ll look at the symptoms of idiopathic hypersomnia, causes, and a few treatments. Calling all doctors: every video also contains a tip for doctors and healthcare professionals!

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✅ IN THIS VIDEO:
0:38 – Invitation to Physicians
1:12 – Other types of Hypersomnias
1:17 – Thank you, Dr. Amelia for this request!
1:41 – What is Idiopathic Hypersomnia or IHS?
2:22 – One Keypoint of IHS: Sleeping longer at night doesn’t help
2:35 – One Characteristic of IHS
2:51 – Other symptoms of IHS
3:01 – How common is IHS?
3:32 – What causes IHS?
4:13 – Who is affected by IHS?
4:50 – When do symptoms appear?
5:43 – Sleep Paralysis
5:48 – Hypnagogic hallucinations
6:11 – Tests and Ratings to determine IHS
7:01 – IHS is a diagnosis of exclusion
8:56 – What to do with an IHS diagnosis
10:21 – Tip for Physicians and Healthcare Professionals
10:29 – Watch out for comorbidities
10:45 – Watch out for drug interactions
11:29 – Can you treat IHS without medication?
11:59 – General recommendations for everyone (with or without IHS)

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Learn about new approaches, tools and a European proposal for diagnosis and classification of hypersomnias.

Yves Dauvilliers, MD, PhD, has held the position of Professor of Neurology and Physiology, and Head of the clinical and research activity of the sleep laboratory at the University of Montpellier, France since 2005. Dr. Dauvilliers is a member of the research group INSERM U1061 and coordinator of the French National Reference Network for Orphan Diseases (Narcolepsy, Hypersomnia, Kleine-Levin Syndrome). He is author or coauthor of more than 370 papers published in international and national peer-reviewed journals, several book chapters. He has also served as editor of three French books related to sleep medicine.

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Amy Desmarais is a long-time supporter of and volunteer for the Hypersomnia Foundation and currently serves as the organization’s Treasurer/Chief Financial Officer. She talks about her experience of living with IH and successfully managing her professional, personal, and family life.

If this video is helpful to you, please consider donating to HF. Your donation makes these resources possible! https://www.hypersomniafoundation.org/donate/
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Dr. Derek Stitt talks with Dr. David T. Plante about the Wisconsin Sleep Cohort study to estimate the prevalence of idiopathic hypersomnia.

Read the related article in Neurology.

Disclosures can be found at Neurology.org.
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Andy Berkowski, MD of ReLACS Health explains the diagnostic term idiopathic hypersomnia (IH), how it is diagnosed, and why the test to diagnose the condition, the multiple sleep latency test (MSLT), may be misleading.

For more information, read his blog post on this topic: https://www.relacshealth.com/blog/does-idiopathic-hypersomnia-exist
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Dr. Eric Griggs explains the sleep disorder idiopathic hypersomnia

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For more YouTube Content: https://www.youtube.com/channel/UC3ijTadOgOLbGWGC1rRy9lA
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Video abstract of an original research “Impairment in Functioning and Quality of Life in Patients with Idiopathic Hypersomnia: The Real World Idiopathic Hypersomnia Outcomes Study (ARISE)” published in the open access journal Nature and Science of Sleep by Joanne Stevens, Logan D Schneider, Aatif M Husain et al.

Read the full paper here: https://www.dovepress.com/impairment-in-functioning-and-quality-of-life-in-patients-with-idiopat-peer-reviewed-fulltext-article-NSS

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Anne Marie Morse, DO, FAASM, Geisinger Medical Center, Danville, PA, briefly discusses the results of a post-hoc analysis investigating the effects of lower-sodium oxybate treatment in individuals with idiopathic hypersomnia. Dr Morse explains that there was a reduction in the need for excessive sleep time in these individuals, allowing them to gain some hours back in their day and achieve more of a normal life experience. This interview took place during the World Sleep Congress 2022 in Rome, Italy.
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In Part II of this interview, Emmanuel Mignot, MD, PhD, Director of the Stanford Center for Sleep Sciences and Medicine at Stanford University speaks with Julie Flygare, JD, President & CEO of Project Sleep, to discuss the narcolepsy research field’s re-thinking of the classifications of type 2 narcolepsy without cataplexy and idiopathic hypersomnia.

This is part II a longer interview available here: https://youtu.be/UhTpNK8vvqk
Recorded on Thursday, April 23, 2020

Dr. Emmanuel Mignot is Professor of Psychiatry and Behavioral Sciences at Stanford University. He received his M.D. and Ph.D. from Paris V and VI University in France. Dr. Mignot is internationally recognized for discovering the cause of narcolepsy. He has received numerous research grants and honors and is the co-author of more than 200 original scientific publications. Most of Dr. Mignot’s current research focuses on the neurobiology, genetics and immunology of narcolepsy, a disorder caused by hypocretin (orexin) cell loss, with indirect interest in the neuroimmunology of other brain disorders. His laboratory uses state of the art human genetics techniques, such as genome wide association, exome or whole genome sequencing in the study of human sleep and sleep disorders, with parallel studies in animal models. His laboratory is also interested in web-based assessments of sleep disorders, computer-based processing of polysomnography (PSG), and outcomes research.

Julie Flygare, J.D. is the President & CEO of Project Sleep and award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. After receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. In 2013, Flygare founded Project Sleep as a national non-profit organization dedicated to raising awareness about sleep health and sleep disorders. In her current role, she aims to empower a new generation of speakers, writers, patient advocates and community leaders in the sleep space. She is the co-creator of the first-ever scholarship program for students with narcolepsy, along with the Rising Voices of Narcolepsy℠ leadership training program. Flygare received her B.A. from Brown University and her J.D. from Boston College Law School, focusing on health law and policy.

This video is brought to you by Project Sleep, a 501(c)(3) non-profit organization dedicated to raising awareness of sleep health and sleep disorders. Project Sleep’s current programming includes the Rising Voices of Narcolepsy℠ leadership training program, the Jack & Julie Narcolepsy Scholarship, Narcolepsy: Not Alone®, the Sleep In campaign, and national sleep advocacy efforts. Learn more: http://project-sleep.com/

Note: This event is for educational purposes and not intended to be a substitute for professional medical advice. Should you have personal healthcare-related questions, please contact your sleep specialist or a qualified health provider.

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